Hi everyone

has anyone ever been on Hydroxychloroquine ? i started them about 2 mths ago and some of the swelling has gone down on my hands and feet but the pain seams to be more as if the fluid was being a cussion for the bones. but when i rang the rummy help line before christmas she said it was just the fybromyalger that was causing the pain not the RA but i know the pain is getting worse but they keep saying that the RA is staying at the same level any body got or had this problem.

hope you are all OK and have not done two much.
Take Care

Audrey.

I was on this as beginning of my treatment as well but it did not work for me so it was stopped.

I know the helpline is shut at the moment but may be while ringing them as they may be
able to put you in touch with someone in the same position as you who could help you

Rose

Hi Audrey. I have been taking methotrexate and hydroxychloroquine together for around 2 years.
I know what you mean about the pain, and being told that the bloods are coming back ok, and it must be the fibromyalgia.
I have lots of hip pain, which they say isnt anything to do with my hip, but is my back and the fibro, my ankles are constantly painful, but as they dont count in the DAS My consultant keeps talking about an anti-TNF but so far it hasnt happened, I have an appointment on 9th January with the specialist nurse, so I am hoping they will get a move on!!! I have been awake most of the night again with pain, so even if the bloods are ok I'm not!!!